The Maristán stigma scale: a standardized international measure of the stigma of schizophrenia and other psychoses.

BACKGROUND: People with schizophrenia face prejudice and discrimination from a number of sources including professionals and families. The degree of stigma perceived and experienced varies across cultures and communities. We aimed to develop a cross-cultural measure of the stigma perceived by people with schizophrenia. METHOD: Items for the scale were developed from qualitative group interviews with people with schizophrenia in six countries. The scale was then applied in face-to-face interviews with 164 participants, 103 of which were repeated after 30 days. Principal Axis Factoring and Promax rotation evaluated the structure of the scale; Horn's parallel combined with bootstrapping determined the number of factors; and intra-class correlation assessed test-retest reliability. RESULTS: The final scale has 31 items and four factors: informal social networks, socio-institutional, health professionals and self-stigma. Cronbach's alpha was 0.84 for the Factor 1; 0.81 for Factor 2; 0.74 for Factor 3, and 0.75 for Factor 4. Correlation matrix among factors revealed that most were in the moderate range [0.31-0.49], with the strongest occurring between perception of stigma in the informal network and self-stigma and there was also a weaker correlation between stigma from health professionals and self-stigma. Test-retest reliability was highest for informal networks [ICC 0.76 [0.67 -0.83]] and self-stigma [ICC 0.74 [0.64-0.81]]. There were no significant differences in the scoring due to sex or age. Service users in Argentina had the highest scores in almost all dimensions. CONCLUSIONS: The MARISTAN stigma scale is a reliable measure of the stigma of schizophrenia and related psychoses across several cultures. A confirmatory factor analysis is needed to assess the stability of its factor structure.

Standardization of the MARISTÁN scale to measure needs in people with schizophrenia and related psychoses.

OBJECTIVE: Existing measures of needs in severe mental illness have been developed mainly from professionals' viewpoints and are Eurocentric. Our aim was to standardize a measure of the needs of people with schizophrenia across several cultures and based on users' own viewpoints. METHOD: An instrument to measure needs, based on qualitative data on users', carers' and professionals' views, was tested in 164 people with schizophrenia or related psychoses in six countries. Participants underwent face-to-face interviews, one third of which were repeated 30 days later. Principal axis factoring and Promax rotation evaluated scale structure; Horn's parallel combined with bootstrapping determined the number of factors; and intra-class correlation assessed test-retest reliability. RESULTS: The instrument contained four factors: (1) health needs; (2) work and leisure needs; (3) existential needs; and (4) needs for support in daily living. Cronbach's α for internal consistency was 0.81, 0.81, 0.77 and 0.76 for factors 1-4 and 0.81 for the scale as a whole. Correlation between factors was of moderate range for the first three factors (0.41-0.50) and low for the fourth factor (0.14-0.29). Intra-class correlation coefficient for test-retest reliability was 0.74 (0.64-0.82) for the whole scale. Mean item score on needs for support in daily living was lower than for the other factors. CONCLUSIONS: The MARISTÁN Scale of Needs evaluates needs from the patient perspective and it is a valid instrument to measure the needs of people with severe mental illness across cultures.

Sistemas de salud mental en El Salvador, Guatemala y Nicaragua: resultados de una evaluación mediante el WHO-AIMS / Mental health systems in El Salvador, Guatemala, and Nicaragua: results of a WHO-AIMS evaluation

Los autores realizaron una evaluación de los sistemas de salud mental en El Salvador, Guatemala y Nicaragua, por medio de un grupo de indicadores seleccionados. Para recopilar la información en los países se utilizó el Instrumento de Evaluación para Sistemas de Salud Mental de la Organización Mundial de la Salud (WHO-AIMS, por su sigla en inglés). Nicaragua, Guatemala y El Salvador tienen serias limitaciones en sus sistemas nacionales de salud mental, en especial en la atención primaria, así como una marcada insuficiencia de recursos humanos calificados. El presupuesto dedicado a la salud mental apenas representa 1 por ciento del presupuesto general de salud y los hospitales psiquiátricos situados en la capital de los países consumen más de 90 por ciento de los fondos de salud mental. Los limitados recursos (materiales y humanos) existentes se concentran en las respectivas capitales de los países. No se han formulado políticas ni legislaciones nacionales de salud mental. Sin embargo, las tres naciones cuentan con planes nacionales en ejecución. Asimismo, se ha avanzado en el diseño e implementación de programas de protección de la salud mental en situaciones de desastre. Es necesario establecer acuerdos con las procuradurías de los derechos humanos para incrementar la vigilancia y protección de los derechos humanos en las personas afectadas por enfermedades mentales. En los últimos años se han logrado impulsar algunas experiencias innovadoras que requieren ser generalizadas. La Organización Panamericana de la Salud (OPS/OMS) y el proyecto WHO-AIMS han contribuido al desarrollo de modelos comunitarios de servicios de salud mental. También se identificaron prioridades y se plantean recomendaciones para la acción.

The authors evaluated the mental health systems of El Salvador, Guatemala, and Nicaragua, using a group of select indicators. The World Health Organization Assessment Instrument for Mental Health Systems (WHO-AIMS) was used to collect data from the nations. The national mental health systems of Nicaragua, Guatemala, and El Salvador have serious limitations, especially in primary care, and a marked lack of qualified human resources. Budget allocations for mental health care are barely 1 percent of the total health care budgets; and the psychiatric hospitals located in the national capitals consume at least 90 percent of those funds. The limited human and material resources available are concentrated in the respective country capital cities. National mental health policies and legislation have not been adopted; however, all three countries do have national plans in progress. Furthermore, all three have designed and implemented programs for mental health care in case of disaster. Agreements must be reached with offices for the defense of human rights to raise awareness and protection of rights for the mentally ill. In recent years, new experiences have been gained and these should be distributed more widely. The Pan American Health Organization (PAHO/WHO) and the WHO-AIMS project have contributed toward developing community models for mental health services. Lastly, priorities have been identified and action items recommended.

[Mental health systems in El Salvador, Guatemala, and Nicaragua: results of a WHO-AIMS evaluation]. / Sistemas de salud mental en El Salvador, Guatemala y Nicaragua. Resultados de una evaluación mediante el WHO-AIMS.

The authors evaluated the mental health systems of El Salvador, Guatemala, and Nicaragua, using a group of select indicators. The World Health Organization Assessment Instrument for Mental Health Systems (WHO-AIMS) was used to collect data from the nations. The national mental health systems of Nicaragua, Guatemala, and El Salvador have serious limitations, especially in primary care, and a marked lack of qualified human resources. Budget allocations for mental health care are barely 1% of the total health care budgets; and the psychiatric hospitals located in the national capitals consume at least 90% of those funds. The limited human and material resources available are concentrated in the respective country capital cities. National mental health policies and legislation have not been adopted; however, all three countries do have national plans in progress. Furthermore, all three have designed and implemented programs for mental health care in case of disaster. Agreements must be reached with offices for the defense of human rights to raise awareness and protection of rights for the mentally ill. In recent years, new experiences have been gained and these should be distributed more widely. The Pan American Health Organization (PAHO/WHO) and the WHO-AIMS project have contributed toward developing community models for mental health services. Lastly, priorities have been identified and action items recommended.